Webinars

The FDA has granted breakthrough therapy designation for a promising new treatment for Sjögren’s disease – a major milestone that raises a critical question for all of us in Europe: ” When will European patients have access – and what happens next?”.

A clear and patient-friendly overview of two innovative immune-based treatments and their potential role in Sjögren’s disease.

Αn interactive, patient-focused webinar that will shed light on what clinical trials really mean for people living with Sjögren’s Disease. No slides – just open discussion!

All the recommendations agree that patients with RMDs should engage in regular physical activity. But how do you find the motivation when you are already tired or in pain? What role does physical activity play in disease management and what benefits can you expect? Suzanne Arends, PhD, Assistant Professor/Clinical Epidemiologist explains why it matters. https://www.youtube.com/watch?v=59lkGwKf7VM

Many in our community face significant mental health challenges that often go unrecognized and untreated. This webinar aims to create a safe space for sharing experiences and normalizing the conversation around mental and emotional health.  Dr. Al Freedman, a psychologist and rare disease dad, and our very own Coralie Bouillot and Ana Vieira, will engage

A special webinar titled “Highlights of ISSjD Symposium and EULAR 2024 Congress” took  place on September 4 2024, at 18:00 CET with keynote speaker Dr. Matilde Bandeira, a leading expert in Sjögren’s Disease, presenting the most important highlights from both the **ISSjD 2024** and **EULAR 2024** conferences, and focusing on the latest developments in Sjögren’s

The webinar Video in 5 languages English Finnish French Greek Romanian Portuguese Spanish  (English, Finnish, French, Greek, Romanian, Portuguese and Spanish) is available οn our YouTube Channel.