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One Voice, Many Patients: Meet Sjögren Europe Sjögren Europe is a European federation of national patient associations, founded in Switzerland in February 2019 with a clear and urgent mission: to give the many thousands of people living with Sjögren’s Disease across Europe a stronger, more unified voice. The organisation works to increase visibility and awareness […]

It’s Not Just Tiredness: The Many Faces of Sjögren’s Fatigue Fatigue is consistently reported as one of the most prevalent and debilitating symptoms of Sjögren’s Disease — yet it remains widely underestimated, misinterpreted, and poorly addressed in clinical practice. Unlike ordinary tiredness, Sjögren’s fatigue is persistent, unpredictable, and profoundly affects every aspect of daily life,

Sjögren’s Doesn’t Only Affect Adults — What Families Need to Know While Sjögren’s Disease is most commonly associated with adults, it can also affect children and adolescents — often presenting in ways that differ significantly from adult cases and are considerably harder to recognise. Symptoms such as joint pain, fatigue, enlarged glands, and recurring fever

Knowledge Is Power: Understanding Clinical Trials in Sjögren’s Disease Clinical trials are the foundation of medical progress — and for patients living with Sjögren’s Disease, they represent one of the most important pathways to better treatments and improved quality of life. Every medication or therapy available today has gone through this process, yet many patients

Sjögren and Dry Eyes: 12 Essential Points Dry eye is one of the most recognised symptoms of Sjögren’s Disease, yet it is also one of the most misunderstood and undertreated. Not all patients experience it in the same way — dry eye in Sjögren is a multifactorial condition, influenced by the inflammatory nature of the

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by Prof. dr. Rinie Geenen On the actual World Sjögren’s day, we share this self-help booklet on targeting chronic fatigue in Sjögren’s Syndrome by Prof. dr. Rinie Geenen, who is a psychologist at Utrecht University, the Netherlands. He was involved in the development of treatment programs and international guidelines for the treatment of fatigue and

Sjögren’s is characterized by dry eyes (xerophtalmia) and dry mouth (xerostomia). Dry eyes and dry mouth are disabling symptoms that have a strong impact on the quality of life. However, Sjögren’s is so much more than dry eyes and dry mouth: it can affect the whole body. New to Sjögren’s? Want to know the basic

Editorial in clinical and experimental rheumatology journal Want a more in-depth look at Sjögren’s from a patient perspective? Check our editorial about Sjögren’s patients unmet needs: “The European patients’ community perspective” in the Fourth Annual Supplement on Sjögren’s syndrome of the “Clinical and Experimental Rheumatology” journal (2021)! The European patients’ community perspective Download the paper