Tips for living with Sjögren
Download the leaflet here in PDF format
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Material
Lack of understanding – 2020
Click on the flags to watch the video (in Dutch) with corresponding subtitles: This video about the lack of understanding, that probably all patients face on a regular basis, was made by the Dutch Sjögren’s Patients Association in 2020. Thanks to them for giving us the permission to make subtitles for the wider Sjögren’s Patients
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Targeting Chronic Fatigue in Sjögren’s Syndrome
by Prof. dr. Rinie Geenen On the actual World Sjögren’s day, we share this self-help booklet on targeting chronic fatigue in Sjögren’s Syndrome by Prof. dr. Rinie Geenen, who is a psychologist at Utrecht University, the Netherlands. He was involved in the development of treatment programs and international guidelines for the treatment of fatigue and
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What is Sjögren’s? / How is Sjögren’s diagnosed and treated?
Sjögren’s is characterized by dry eyes (xerophtalmia) and dry mouth (xerostomia). Dry eyes and dry mouth are disabling symptoms that have a strong impact on the quality of life. However, Sjögren’s is so much more than dry eyes and dry mouth: it can affect the whole body. New to Sjögren’s? Want to know the basic
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Sjögren’s: The european patients’ community perspective
Editorial in clinical and experimental rheumatology journal Want a more in-depth look at Sjögren’s from a patient perspective? Check our editorial about Sjögren’s patients unmet needs: “The European patients’ community perspective” in the Fourth Annual Supplement on Sjögren’s syndrome of the “Clinical and Experimental Rheumatology” journal (2021)! The European patients’ community perspective Download the paper
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Talk About Sjögren’s – Fall 2020
Click on the flags to watch the video (in Dutch) with corresponding subtitles: Topics: covid-19, testimonies, research, Sjögren Europe, fatigue, vaginal dryness and sexual dysfunction. This video was made by the Dutch Sjögren’s Patients Association in Fall 2020. Thanks to them for giving us the permission to make subtitles for the wider Sjögren’s Patients community!
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