world sjögren’s day july 23, 2023 Τhis year, our campaign was about unmet needs and we encouraged patients, their families and friends to come together and make themselves heard. Dedicate themselves to educating others and help increase the much-needed understanding of Sjögren’s disease by sharing our posts in social media publication. Sjögren’s is a systemic, …
world sjögren’s day july 23, 2022 World Sjögren’s Day is on July 23rd. This year, our campaign will be about dry eyes, especially as July is also Dry Eyes Month. Although Sjögren’s is a systemic disease that goes far beyond dryness, dryness remains a frequent, significant and disabling symptom.
going beyond hydration for dry eye in sjögren’s; a complete perspective To initiate World Sjögren’s Day 2022 campaign, we organised a webinar about dry eyes! This webinar was held on Tuesday July 5th 2022 with Dr Ankur Barua, ophtalmologist, in association with the BSSA. You can watch this webinar on replay just below (this webinar will …
with Dr Ankur Barua, ophtalmologist 1. Dry eye is a multifactorial disease There is often not just “one type” of dry eye; and not all those with Sjögren’s have the same level or form of dry eye 2. Dry eye in Sjögren’s is not fully understood There is still a lot to learn …
Sjögren’s and Dry Eye – 12 points regarding the topic Read More »
Here we share with you some patients’ perspectives about Sjögren’s and dry eye where they explain how it is a challenge for them and how it impacts their life. Sjögren’s is often characterized by dry eyes (xerophtalmia) and dry mouth (xerostomia). Dry eyes and dry mouth are disabling symptoms that have a strong impact on …
Sjögren’s and Dry Eye – Patients’ perspectives for World Sjögren’s Day 2022 Read More »
july 23, 2021
Sjögren Europe won the first prize at the Best Practice Fair Award at the EULAR PARE Virtual Conference 2021 for this campaign among more than 25 other different projects. Click on the picture below to downlaod and read the poster we presented at the conference:
Fatigue is one of the most prevalent and disabling patient reported symptom of Sjögren’s. Fatigue in Sjögren’s clearly differs from ordinary tiredness. We describe it as an ever-present, fluctuating, and nonrelievable lack of vitality being beyond one’s own control. Not everyone experiences it in the same way, but fatigue is undeniably a permanent part of …
Sjögren Europe Campaign for World Sjögren’s Day 2021 is about Fatigue Read More »
The core of our campaign is to express and raise awareness about patients’ fatigue and the different ways it manifests itself. To this end, we are sharing Teri Rumpf’s 15 types of Sjögren’s fatigue with you in a multilingual visual campaign on social media and on our website. We shared one type of fatigue a …
