Sjögren Europe is a European federation of national patient associations, founded in Switzerland in February 2019 with a clear and urgent mission: to give the many thousands of people living with Sjögren’s Disease across Europe a stronger, more unified voice. The organisation works to increase visibility and awareness of the disease at all levels, foster meaningful patient involvement in scientific research and healthcare systems, and advocate for better and more equitable access to diagnosis, treatment, and care across borders. Sjögren Europe is led by patients who understand first-hand the daily realities of living with this complex and often invisible disease. This leaflet introduces the organisation’s mission, key objectives, and the perspectives of the wider European patient community — a community united by shared challenges, significant unmet needs, and an unwavering commitment to change.