Norway – Norsk Revmatikerforbund (NRF)
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Why and how getting involved in Sjögren research?
live webinar with Maarten de Wit Advisor for participation in research and integration of patient perspective in healthcare, Chair EULAR study group for Collaborative Research, the Netherlands Wednesday May 26th 2021, 18:00 CET (Paris, Berlin, Madrid time) You can watch the webinar on replay just below or on our YouTube channel! In this webinar, Maarten
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Switzerland – Association Romande du Syndrome de Sjögren
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Sjögren Awareness Month 2021
April 2021 Sjögren Awareness Month aims to raise awareness on Sjögren’s. During this month we publish different contents on our social media channels.
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World Sjögren’s Day 2021: A 3-axis campaign about fatigue
Sjögren Europe won the first prize at the Best Practice Fair Award at the EULAR PARE Virtual Conference 2021 for this campaign among more than 25 other different projects. Click on the picture below to downlaod and read the poster we presented at the conference:
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Greece – Hellenic League Against Rheumatism
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Sjögren’s Clinical Trials: An update
Live webinar with Prof Hendrika Bootsma Head of department Rheumatology and Clinical Immunology, University Medical Center Groningen, the Netherlands The objective of this webinar is to provide accurate and up-to-date information about research on Sjögren’s Syndrome. You can watch the webinar on replay just below or on our YouTube channel! This webinar has been organized
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Sjögren Europe Campaign for World Sjögren’s Day 2021 is about Fatigue
Fatigue is one of the most prevalent and disabling patient reported symptom of Sjögren’s. Fatigue in Sjögren’s clearly differs from ordinary tiredness. We describe it as an ever-present, fluctuating, and nonrelievable lack of vitality being beyond one’s own control. Not everyone experiences it in the same way, but fatigue is undeniably a permanent part of
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Netherlands – Nationale Vereniging Sjögrenpatiënten
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