The third webinar of the Sjögren Europe Capability Building Program held virtually on April 19, 17:30 – 19:00 CET, focus on “Leveraging the Voice of Patients: How can patients appropriately interact with industry, regulators, and payers?” The webinar included: Overview of how policy decision affect us and easy ways of getting involved. Overview of how medical …
The second webinar of the Sjögren Europe Capability Building Program held virtually on March 13, 17:30 – 19:00 CET, focus on “Zooming out from the day-to-day: Creating an annual activity plan.” The webinar included: Creating an activity plan by setting intentions for the organization Prioritizing activities against vision/mission Building, using, and scheduling an annual plan Understanding …
Dear members, We are pleased to announce that the first webinar as part of the Sjogren’s Capabilities Building Program Webinar 1 leave behinds was a success! We thank all members who were able to attend as your lively engagement was greatly appreciated. For those who were unable to join us, the Webinar featured guest expert …
Click on the flags to watch the video (in Dutch) with corresponding subtitles: This video about the lack of understanding, that probably all patients face on a regular basis, was made by the Dutch Sjögren’s Patients Association in 2020. Thanks to them for giving us the permission to make subtitles for the wider Sjögren’s Patients …
April 2023 Stay tuned!
by Prof. dr. Rinie Geenen On the actual World Sjögren’s day, we share this self-help booklet on targeting chronic fatigue in Sjögren’s Syndrome by Prof. dr. Rinie Geenen, who is a psychologist at Utrecht University, the Netherlands. He was involved in the development of treatment programs and international guidelines for the treatment of fatigue and …
Sjögren’s is characterized by dry eyes (xerophtalmia) and dry mouth (xerostomia). Dry eyes and dry mouth are disabling symptoms that have a strong impact on the quality of life. However, Sjögren’s is so much more than dry eyes and dry mouth: it can affect the whole body. New to Sjögren’s? Want to know the basic …
What is Sjögren’s? / How is Sjögren’s diagnosed and treated? Read More »
