sjogreneurope

Webinar 3: Leveraging the Voice of Patients

The third  webinar of the Sjögren Europe Capability Building Program held virtually on April 19, 17:30 – 19:00 CET, focus on “Leveraging the Voice of Patients: How can patients appropriately interact with industry, regulators, and payers?” The webinar included: Overview of how policy decision affect us and easy ways of getting involved. Overview of how medical …

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Webinar 2: Creating an annual activity plan

The second webinar of the Sjögren Europe Capability Building Program  held virtually on March 13, 17:30 – 19:00 CET, focus on “Zooming out from the day-to-day: Creating an annual activity plan.” The webinar  included: Creating an activity plan by setting intentions for the organization Prioritizing activities against vision/mission Building, using, and scheduling an annual plan Understanding …

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Targeting Chronic Fatigue in Sjögren’s Syndrome

by Prof. dr. Rinie Geenen On the actual World Sjögren’s day, we share this self-help booklet on targeting chronic fatigue in Sjögren’s Syndrome by Prof. dr. Rinie Geenen, who is a psychologist at Utrecht University, the Netherlands. He was involved in the development of treatment programs and international guidelines for the treatment of fatigue and …

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What is Sjögren’s? / How is Sjögren’s diagnosed and treated?

Sjögren’s is characterized by dry eyes (xerophtalmia) and dry mouth (xerostomia). Dry eyes and dry mouth are disabling symptoms that have a strong impact on the quality of life. However, Sjögren’s is so much more than dry eyes and dry mouth: it can affect the whole body. New to Sjögren’s? Want to know the basic …

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