World Sjögren’s Day 2023
world sjögren’s day july 23, 2023 Τhis year, our campaign was about unmet needs and we encouraged patients, their families and friends to come together and make themselves heard. Dedicate themselves to educating others and help increase the much-needed understanding of Sjögren’s disease by sharing our posts in social media publication. Sjögren’s is a systemic, …
Webinar 3: Leveraging the Voice of Patients
The third webinar of the Sjögren Europe Capability Building Program held virtually on April 19, 17:30 – 19:00 CET, focus on “Leveraging the Voice of Patients: How can patients appropriately interact with industry, regulators, and payers?” The webinar included: Overview of how policy decision affect us and easy ways of getting involved. Overview of how medical …
Webinar 2: Creating an annual activity plan
The second webinar of the Sjögren Europe Capability Building Program held virtually on March 13, 17:30 – 19:00 CET, focus on “Zooming out from the day-to-day: Creating an annual activity plan.” The webinar included: Creating an activity plan by setting intentions for the organization Prioritizing activities against vision/mission Building, using, and scheduling an annual plan Understanding …
Webinar 1: Communications
Dear members, We are pleased to announce that the first webinar as part of the Sjogren’s Capabilities Building Program Webinar 1 leave behinds was a success! We thank all members who were able to attend as your lively engagement was greatly appreciated. For those who were unable to join us, the Webinar featured guest expert …
Lack of understanding – 2020
Click on the flags to watch the video (in Dutch) with corresponding subtitles: This video about the lack of understanding, that probably all patients face on a regular basis, was made by the Dutch Sjögren’s Patients Association in 2020. Thanks to them for giving us the permission to make subtitles for the wider Sjögren’s Patients …