sjogreneurope

Platform clinicaltrials.eu

Clinical Trials

Bringing Clinical Trials Closer to Patient They  understand the challenges you and your family are navigating through these difficult times. They  support patients and their families by providing easy-to-access, understandable information about clinical trials. The platform offers comprehensive details on studies, eligibility, and locations in a patient-friendly language. The platform eases the search process, reducing the informational […]

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Epidemiology of Sjögren’s: A Systematic Literature Review

Clinical Trials

Primary Sjögren’s is a multi-system autoimmune disease affecting patients’ physical, mental, and emotional wellbeing. The epidemiology of Sjögren’s is not well understood, and up-to-date epidemiological evidence is needed to improve knowledge and awareness of Sjögren’s among patients and healthcare professionals, and to ascertain the global burden of disease. The objective of this research was to

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World Sjögren’s Day 2023

WSD, WSD 2023

world sjögren’s day july 23, 2023 Τhis year, our campaign was about unmet needs and we encouraged patients, their families and friends to come together and make themselves heard. Dedicate themselves to educating others and help increase the much-needed understanding of Sjögren’s disease by sharing our posts in social media publication. Sjögren’s is a systemic,

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Webinar 3: Leveraging the Voice of Patients

Activities, Sjögren Europe Capability Building Program

The third  webinar of the Sjögren Europe Capability Building Program held virtually on April 19, 17:30 – 19:00 CET, focus on “Leveraging the Voice of Patients: How can patients appropriately interact with industry, regulators, and payers?” The webinar included: Overview of how policy decision affect us and easy ways of getting involved. Overview of how medical

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Webinar 2: Creating an annual activity plan

Activities, Sjögren Europe Capability Building Program

The second webinar of the Sjögren Europe Capability Building Program  held virtually on March 13, 17:30 – 19:00 CET, focus on “Zooming out from the day-to-day: Creating an annual activity plan.” The webinar  included: Creating an activity plan by setting intentions for the organization Prioritizing activities against vision/mission Building, using, and scheduling an annual plan Understanding

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