Sjögren’s is characterized by dry eyes (xerophtalmia) and dry mouth (xerostomia). Dry eyes and dry mouth are disabling symptoms that have a strong impact on the quality of life. However, Sjögren’s is so much more than dry eyes and dry mouth: it can affect the whole body. New to Sjögren’s? Want to know the basic […]
What is Sjögren’s? / How is Sjögren’s diagnosed and treated? Read More »
Editorial in clinical and experimental rheumatology journal Want a more in-depth look at Sjögren’s from a patient perspective? Check our editorial about Sjögren’s patients unmet needs: “The European patients’ community perspective” in the Fourth Annual Supplement on Sjögren’s syndrome of the “Clinical and Experimental Rheumatology” journal (2021)! The European patients’ community perspective Download the paper
Sjögren’s: The european patients’ community perspective Read More »
Click on the flags to watch the video (in Dutch) with corresponding subtitles: Topics: covid-19, testimonies, research, Sjögren Europe, fatigue, vaginal dryness and sexual dysfunction. This video was made by the Dutch Sjögren’s Patients Association in Fall 2020. Thanks to them for giving us the permission to make subtitles for the wider Sjögren’s Patients community!
Talk About Sjögren’s – Fall 2020 Read More »
April 2022 For Sjögren’s Awareness Month 2022, Sjögren Europe presents its members, the national patient organisations representing people with Sjögren’s. Their work for patients and to raise awareness about this disease is precious and deserves more visibility. We asked them to make a short video to tell us about their activities, challenges and hopes.
Awareness Month 2022 Read More »
july 23, 2021 check our dedicated page for more information and to discover our campaign about fatigue
World Sjögren’s day 2021 Read More »
7-10 September 2022, Rome, Italy Mascah, Ana, Alice, Joyce, Katy, Linda and Coralie, Board Members of Sjögren Europe, attended the 15th ISSS 2022 in Rome. During the congress, we had a board meeting, took part in the ISN (international Sjögren’s network) meeting, Coralie and Ana made a presentation, Alice presented a poster, we met many
15th international Sjögren’s symposium Read More »
1-4 June 2022, Copenhagen, Denmark Linda, Ana, Alice, Joyce, Katy and Coralie (from left to right), Board Members of Sjögren Europe, attended the EULAR congress 2022 in Copenhagen. During the congress, we made an oral presentation about Sjögren Europe: “Sjögren Europe: Review of its first three years of activity”. You can dowload the presentation in
EULAR Congress 2022 Read More »
live webinar for sjögen’s awareness month with Prof Xavier Mariette MD, PhD Head of Rheumatology Bicetre Hospital, Paris-Sud University, Paris, France Thursday, April 28, 2022, at 18:30 CEST Sjögren Europe (SE) was very happy to organise a webinar for Sjögren’s Awareness Month with Prof Mariette about the latest news about Sjögren’s and the European project
