Brain Fog: Cerebral changes in auto-immune disease
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Webinar 3: Leveraging the Voice of Patients
The third webinar of the Sjögren Europe Capability Building Program held virtually on April 19, 17:30 – 19:00 CET, focus on “Leveraging the Voice of Patients: How can patients appropriately interact with industry, regulators, and payers?” The webinar included: Overview of how policy decision affect us and easy ways of getting involved. Overview of how medical
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Webinar 2: Creating an annual activity plan
The second webinar of the Sjögren Europe Capability Building Program held virtually on March 13, 17:30 – 19:00 CET, focus on “Zooming out from the day-to-day: Creating an annual activity plan.” The webinar included: Creating an activity plan by setting intentions for the organization Prioritizing activities against vision/mission Building, using, and scheduling an annual plan Understanding
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Webinar 1: Communications
Dear members, We are pleased to announce that the first webinar as part of the Sjogren’s Capabilities Building Program Webinar 1 leave behinds was a success! We thank all members who were able to attend as your lively engagement was greatly appreciated. For those who were unable to join us, the Webinar featured guest expert
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Lack of understanding – 2020
Click on the flags to watch the video (in Dutch) with corresponding subtitles: This video about the lack of understanding, that probably all patients face on a regular basis, was made by the Dutch Sjögren’s Patients Association in 2020. Thanks to them for giving us the permission to make subtitles for the wider Sjögren’s Patients
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Targeting Chronic Fatigue in Sjögren’s Syndrome
by Prof. dr. Rinie Geenen On the actual World Sjögren’s day, we share this self-help booklet on targeting chronic fatigue in Sjögren’s Syndrome by Prof. dr. Rinie Geenen, who is a psychologist at Utrecht University, the Netherlands. He was involved in the development of treatment programs and international guidelines for the treatment of fatigue and
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