To mark World Sjögren’s Day 2025, Sjögren Europe is highlighting the real unmet needs of people living with Sjögren’s Disease.
This year’s theme, “Awareness Through Research”, reflects our commitment to using data and community input to drive change.
What are the unmet needs?
The “Spotlight on Sjögren’s” study – a real-world survey supported by Novartis and shaped in collaboration with patients – revealed persistent gaps:
- Long diagnostic delays (4+ years for most participants)
- Symptoms like fatigue, dryness, and pain still poorly addressed
- Low satisfaction with current treatment options
- Significant impact on daily life, mental health, and relationships
What’s happening for World Sjögren’s Day 2025?
Social media awareness campaign
From early July until July 23, we’re sharing patient quotes and data insights from the study. Follow us and share to help raise awareness!
Online event – July 9, 2025
“Everything You Always Wanted to Know About Clinical Trials But Were Afraid to Ask”
A live, interactive event with no slides – just open discussion.
📌 Organised by patients, for patients.
